We've been very frustrated with the way he's been feeding because he averages about 17-22 oz per day. To us, that didn't seem like it will be sufficient enough to stay away from the feeding tube. 2 weeks ago, his weight was 10 lbs 14 oz. We needed him to at least be over 11 lbs. Carrying him felt like he was getting lighter. Feeding him formula, he will constantly get distracted and maybe play with it.
So we go in and the weighing begins. Before he is put on the scale, the wife and I started to just blurt some numbers out. Funny thing was that we both blurted out numbers over 11. 11lbs 2 oz and 11 lbs 6 oz. So the weighing begins and weight was 11lbs 6 oz. Exactly the date of his birthday. Pediatrician comes in and goes, I want him to go on the feeding tube. It is best for him because the last month when he was weighed, he was 10 lbs 12 oz. Pediatrician says that he isn't growing as rapidly as he should and this is the most crucial point in development. So the pediatrician asks us, what the liver team at Mt. Sinai say? Since my wife was not there last time, I said the following "feeding tube will need to be inserted if he is not thriving." Then I go, 2 weeks ago he weight 10 lbs 14 oz at the liver clinic. Pediatrician looks at me and told me to repeat the weight again and how long ago...I repeat "10 lbs 14 oz". She counts and determines how much of a weight gain he had in 2 weeks and that's at least half a pound. So the pediatrican goes..."they might give him a chance." Which is better than what she originally said. So finally we ended the visit with the pediatrician saying something like this. Kyle looks remarkable and alert. His stomach feels soft, she can't feel his liver as the liver at one point was enlarged and he is not jaundiced anymore. We will report his weight on Tuesday and we'll still keep our fingers crossed...but at least one hurdle passed.
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| another milestone...Kyle playing in his saucer |
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