Sister singing to baby...

Kyle was admitted to Mt Sinai for 4 days when his fever never went away. 

His liver numbers shoot up and so did his WBC, so they had him admitted and put him on antibiotics. He was the crankiness baby for the last week and a half...and the only way for to him to calm down was his sister singing to him. 

Trip to ER

Our lil boy spiked a 102.8 fever yesterday. It alerted the doctors on board. Liver team had us go in to get blood drawn. When we arrived the fever disappeared, however they still had to draw blood. Kyle's older now and understands it too in a way. Every time a doctor or nurse came in he would start having tears in his eyes., then when they examine him he'll cry his eyes out. Poor baby! At least finding a vein for blood work and IV wasn't hard at all compare to the others.
Luckily after about 3.5 hours, we were discharged. His blood work came with good results and he didn't spike another fever. His total bilirubin was only a .4! Which is great!! The only thing was his liver enzymes which were a little high. but for us it seemed normal since it was never back to normal since last year. Guess we'll see what doctors say next time we visit.
We're home now... And little man hasn't spiked a fever since that then. Keep it that way my boy, keep it that way!!!

picc line out...

Yay!! After about almost a month and a few rounds of antibiotics, his picc line was finally taken out by the home nurse this afternoon. His lab results were good enough that the liver team and ID team felt it was time for the line to come out so it would not cause anymore infection. It's such a big relief for all of us and if Kyle can talk he'll probably say "FINALLY! FREEDOM!". He can get a real bath too! YAY! So far the little man is doing well with the exception of a low grade fever of  like 99-100 because of his shots-- hopefully it goes away soon. Even with a little fever - he's laughing like he normall does, eating more, pooping and smiling!

We want to say Thank you all for those who've been there since day one for all your support and prayers! We are truly lucky to have you all in our lives!


YAY! My picc line is out!




Kyle with his sister in the morning