Go Kyle Go!!!

We got his blood work back! Go Kyle Go! His bilirubin is .4 over .2!! Exactly where the doctors want it...to stay going down and in fact it dropped from his last month's result! But the best part ...his liver enzymes are HALF of what they were last month! Go Kyle Go!!! So extremly proud of our little man!

And another note...he's sitting on his own now...straight instead of leaning forward. At times he'll flop over, but it's alot better than what he did last week. He still needs PT and OT, hopefully that will get approved by city soon so he can catch up to speed with his other friends.

Here are some pics that we didn't get to post last week:

Kyle sitting upright



Birth weight double!!!

Finally Kyle is double his birth weight!!! He's 14lbs 7ozs as of today at his monthly check up with his liver team. (still a little short though) Even though he's a little off his developing skills, the np thinks he looks great. Liver is sill enlarged but that's ok cause liver is a remarkable organ and it may go back to normal size as he gets bigger. He's come a long way!
As for the physical therapy part, he's been evaluated by the pt (thx to our wonderful friend!!!), special Ed teacher and nutritionist - results are that he's borderline, so city may not approve for the IE program. He's being evaluated by the OT today. Even though he may not qualify for city funded IE program, he's got some amazing aunties that will help us out. Like his np said he's young and will catch up.

I'll post pics later.

Happy 8 months

wow! How time flies! Happy 8 months to our little tiger! (a day late)
here's a few updated pictures of our little tiger!

Almost there...

Kyle went for his 6 months check up (yup he's 2 months behind on his shots). He gained 8ozs from a week ago, today he's at 12lbs 12ozs - barely reaching the 3rd percent tile...ALMOST THERE though! She's happy that he's gaining weight though so thats good. He still has an enlarged liver and spleen- we hope it goes down in time. The doc felt he's got low muscle tone and would like for him to get some physical therapy, since he's really not supporting himself sitting and pulling himself up..however Kyle LOVES to jump. Hopefully it'll help with his developing skills once he starts getting it. He got two shots today... His last 2 before he turns a year old. Wow! How time flies! A year old in 4 months!!

Happy 4th everyone!

after his 2 shots

Success....

Our little man is now at 12lbs 4ozs! The greatest news today ever is no feeding tube! Yay! And no more alternating between pregestimil and similiac. Doc wants him straight on similac. And to have a diet like a regular baby would. She's so happy on his progress. His liver is still a little enlarged and so is his spleen, so they'll have to monitor his platelets more now. She said for the first time since he had his surgery that the kasai is a success!! Yay! Today was one of the shortest amount of time we were there. I walked out not asking 50 questions cause she said I should just be happy with all the good news. So I didn't ask... I figured why worry myself more with so many things if he's doing well right? We won't know his blood results until next week (drawing blood was a hard one this time! Strong boy!) - once we know we'll be updating... For now we are going to enjoy the weekend with family as one of his aunts is getting married!!! Congrats to his Yee-Ma!!!

on our way to check up

Thank you!

We would truly like to give a big Thank you to some amazing aunties, uncles and playmates that Kyle has!

We're truly blessed and extremely thankful for everything!

Thank you for being part of our lives and being the best ever!

Happy 7 Months!!!

Happy 7 Months to our little tiger!

He is doing well lately...eating, rolling, almost sitting, jumping, teething, chatting up a storm! His next appointment is in about 3 weeks with his liver team.

Kyle is currently still on pregestimil. We had some left over and didn't want to waste it. Plus insurance sent some over. BTW, does anyone know if we can get retro back for the formula we brought prior to them approving it? I tried calling and it was an automatic machine talking to me, it's so annoying! He averages about 20-21ozs a day of 30 calories per fluid oz and has 1-2 solid feedings a day. He's super slick, he will not eat any plain oatmeal or rice cereal, we need to mix it with apple sauce. ha!

We are slowly started taking him out more. Mostly outdoors, however this past weekend we had brunch with our dear friend Kimmie and her son indoors, wasn't so bad. Kyle was just a little distracted with so much going on. He's starting to recognize places and people, so it takes him a minute to warm up. But once he does he's all smiles. He's such a happy baby. Hopefully in do time we can work up the courage to take him out out more often and enjoy the weather.

Here are some pics of our little tiger...

our little tiger boy

he doesn't really like to get spoon fed ...rather get it straight from the bowl